Choosing Death, Choosing Life: did being distinctly 'normal' make a difference?- - part 2

CNN) -- A brain-dead pregnant woman lies on a hospital bed. Doctors want to keep her on life support until they can deliver her baby. An anguished husband waits.

At first glance, the case of Robyn Benson of Victoria, British Columbia, appears to bear similarities to that of Marlise Munoz in Texas -- except for two key differences.

In Munoz's case, her husband wanted her taken off a ventilator and the hospital acknowledged the fetus she carried was not viable.

But Benson's situation is different.

Here, both her husband, Dylan, and the doctors are trying to keep her on a ventilator until they can deliver the baby via a C-section. And the life inside her is growing normally.

"We go see her every day and she is doing so much to grow our son," Dylan Benson told CTV. "Her brain is not alive, but she still is."

The Benson family ordeal began shortly after Christmas.

Robyn Benson complained of a "terrible, terrible headache" and sent her husband out to get some Tylenol. When he returned, she was unresponsive, but still breathing.

At the hospital, doctors discovered she suffered a brain hemorrhage. She was later declared brain dead.

Now, Dylan Benson is in an unimaginable position.

He's counting down the days to the birth of his son -- and the death of his wife.

A much different case

The Munoz family, on the other hand, had nothing to look forward to.

Their case, which played out internationally, sparked a wrenching two-month legal debate about who is alive, who is dead and how the presence of a fetus changes the equation.

Erick Munoz found his wife unconscious at their home on November 26. A blood clot in her lungs had killed her. She hadn't been breathing for about an hour. At the time, she was 14 weeks pregnant with the couple's second child.

But, unlike the Bensons, the fetus Marlise Munoz was carrying was described by family attorneys as "distinctly abnormal," with multiple deformities including a possible heart problem.

Munoz fought a Texas law that says "you cannot withhold or withdraw life-sustaining treatment for a pregnant patient," eventually winning a lawsuit and the right to remove Marlise from life support in late January.

He said he knew his wife wouldn't want to be kept alive artificially.

A community rallies

Five weeks have passed since Dylan Benson found his wife unconscious. The odds are getting better for the boy he's named Iver.

"The doctors have said that he now has higher than an 80% of survival and that increases with every day that passes," Benson said.

Doctors hope Robyn Benson can carry the boy seven more weeks when she will be about 34 weeks pregnant. The baby will then be healthy enough to be delivered.

The community has rallied to support the Bensons in a online fundraising campaign that began over the weekend.

The Baby Iver Fund began with a goal of $36,000. By early Tuesday, it had already doubled that with 88 days left in the campaign.

And the number keeps climbing: It exceeded $92,000 as of noon (3 p.m. ET), about $17,000 above what it was earlier in the day.

"Please help to raise funds for my unborn son, Iver, and I," reads the front page of the online effort. "He has already lost his mother, but I want to provide the best life I possibly can for him."

The money will be used to pay for bills, baby supplies, daycare, housing, food, transportation and an education fund for Iver. Dylan also noted that he hasn't worked during this ordeal, and that compensation during his leave after Iver is born will cover just more than half his normal salary.

People shared the link to the fundraising page around social media, from former co-workers to the local Anglican diocese to strangers in Canada and beyond.

"Humanity fills me with such hope when it comes together like this," tweeted one woman. "Support Dylan and #BabyIver."

Among those chiming in on Twitter was Dylan Benson, who thanked several people -- including one who pointed to a news story from France -- who'd brought attention to his campaign.

He spoke more extensively in a blog post about his unborn baby and wife.

"She was my rock," Dylan wrote of Robyn.

"It is very difficult to know that our son will grow up never meeting his wonderful mother, and that we will have to say our goodbyes to Robyn within hours of seeing Iver for the first time."

Brain-dead Canadian woman dies after son's birth

http://www.cnn.com/video/data/2.0/video/world/2014/02/12/dnt-brain-dead-woman-dies-after-giving-birth.cbc-news.html

From Paula Newton, CNN

updated 7:32 AM EST, Wed February 12, 2014

 

(CNN) -- A ventilator kept Robyn Benson breathing for weeks so the baby growing inside her could survive.

Doctors delivered the brain-dead Canadian woman's son on Saturday. She died the next day.

"On Sunday, we had to unfortunately say goodbye to the strongest and most wonderful woman I have ever met," her husband, Dylan Benson, wrote on his website.

Pregnant woman kept on life support

Their newborn son, Iver, is in a neonatal intensive care unit in Victoria, British Columbia, a hospital spokeswoman said. He could be hospitalized for eight more weeks, Dylan Benson told CNN on Tuesday.

"He's doing well, still learning to breathe and all those things. ... But he's the cutest little man," he said.

The Benson family's ordeal began shortly after Christmas.

Robyn Benson complained of a "terrible, terrible headache" and sent her husband out to get some Tylenol. When he returned, she was unresponsive, but still breathing.

At the hospital, doctors discovered she suffered a brain hemorrhage. She was later declared brain-dead.

The situation left Dylan Benson in an unimaginable position, counting down the days until the birth of his son -- and the death of his wife.

The case drew some comparisons to the case of Marlise Muñoz in Texas, another pregnant woman who was declared brain-dead and hooked up to machines that kept her heart and lungs working. But there were two key differences.

In Muñoz's case, her husband wanted her taken off a ventilator, and the hospital acknowledged the fetus she carried was not viable. A court ultimately ordered the hospital to disconnect the ventilator.

In Benson's situation, family members and doctors agreed to keep her on a ventilator until they could deliver the baby via a cesarean section. And the life inside her was growing normally.

On Tuesday, Dylan Benson told CNN he was grateful for the support he'd received as word spread about his family's story.

"I feel very, very, incredibly thankful. The message of positivity has been incredible, and it's made it easier to get through these past few weeks," he said.

An online fund-raising campaign to support the Bensons began this month.

The Baby Iver Fund started with a goal of $36,000. By Tuesday afternoon, it had already raised more than $150,000.

The money is slated to be used to pay for bills, baby supplies, day care, housing, food, transportation and an education fund for Iver.

"I hope that it makes it so he can have the life he deserves," Dylan Benson said. "I want to thank everyone around the world."

If Robyn Benson were still alive, he said, there's no doubt about what she'd think.

"She would be very proud of our son," he said. "I think she would be happy that there were so many people all over the world that want to see him healthy and happy. "

CNN's Ed Payne, Stephanie Gallman and Catherine E. Shoichet contributed to this report.

Choosing Death, Choosing Life: did being distinctly abnormal make a difference?- part 1

Husband of pregnant woman wants her off life support

By Elizabeth Landau, CNN
updated 4:11 PM EST, Tue December 24, 2013

(CNN) -- Erick Munoz wants to see his wife's wish fulfilled this holiday season, but it's one that carries ethical and legal challenges: To be taken off of life support.

Marlise Munoz, 33, is in serious condition in the intensive care unit at John Peter Smith Hospital in Fort Worth, Texas, hospital officials said. She is unconscious and on a ventilator, her husband told CNN affiliate WFAA, but she wouldn't have wanted her life sustained by a machine.

"We talked about it. We're both paramedics," he told WFAA. "We've seen things out in the field. We both knew that we both didn't want to be on life support."

Complicating an already difficult situation is that Munoz is also pregnant, about 18 weeks along, WFAA reported. Texas state law prohibits withdrawing or withholding life-sustaining treatment from a pregnant patient, regardless of her wishes.

 

Man wants pregnant wife off life support

 

Patients can indicate their future wishes about medical treatment, in the event that they are unable to communicate them, through forms called advance directives. But in Texas, under the Health and Safety Code, such a form includes the provision "I understand that under Texas law this Directive has no effect if I have been diagnosed as pregnant."

Erick Munoz told WFAA doctors said his wife may have suffered a pulmonary embolism, which happens when blood clots travel to the lungs from elsewhere in the body. They do not know how long the baby went without nutrients and oxygen.

The hospital would not release specific details about Marlise Munoz's condition, but officials said the hospital would follow Texas law regarding care during pregnancy.

 

"We have a responsibility as a good corporate citizen here in Tarrant County to also provide the highest quality care we can for all of our patients," said J.R. Labbe, vice president of communications and community affairs for JPS Health Network, in a statement.

"But at all times, we will follow the law as it is applicable to health care in the state of Texas. And state law here says you cannot withhold or withdraw life sustaining treatment for a pregnant patient. It's that clear."

The husband and wife, both paramedics in the Tarrant County area, have a 14-month-old son named Mateo.

Erick Munoz and Marlise Munoz's mother did not immediately respond to requests for comment from CNN.

Erick Munoz found his wife unconscious on November 26, around 2 a.m. He performed CPR on her and then called 911, WFAA reported.

Since that day, the pregnant woman has been on life support, her husband said. Tests have shown that the fetus has a normal heart beat, he said. At 24 weeks, doctors may know more about when the fetus can be taken out, Munoz's family told WFAA. Doctors have also discussed the possibility of taking the fetus to full term.

He told WFAA that his wife had said she would not want to be kept alive by machine, and said he has reached "the point where you wish that your wife's body would stop."

Munoz wears his wife's pink and blue bracelets on his wrist, WFAA reported. Her wedding ring is on his pinkie.

When Munoz walks in the door, he said his son Mateo is waiting for his mother to show up.

"You can see it in his eyes," Munoz said.

 

Brain-dead Texas woman taken off ventilator
http://www.cnn.com/video/data/2.0/video/bestoftv/2014/01/27/newday-valencia-tx-mom-off-of-life-support.cnn.html

From Caleb Hellerman. Jason Morris and Matt Smith, CNN

updated 7:26 AM EST, Mon January 27, 2014

 

Fort Worth, Texas (CNN) -- A wrenching court fight -- about who is alive, who is dead and how the presence of a fetus changes the equation -- came to an end Sunday when a brain-dead, pregnant Texas woman was taken off a ventilator.

The devices that had kept Marlise Munoz's heart and lungs working for two months were switched off about 11:30 a.m. Sunday, her family's attorneys announced.

"May Marlise Munoz finally rest in peace, and her family find the strength to complete what has been an unbearably long and arduous journey," the lawyers, Heather King and Jessica Janicek, said in a written statement.

Munoz was 14 weeks pregnant with the couple's second child when her husband found her unconscious on their kitchen floor November 26. Though doctors had pronounced her brain dead and her family had said she did not want to have machines keep her body alive, officials at John Peter Smith Hospital in Fort Worth had said state law required them to maintain life-sustaining treatment for a pregnant patient.

Attorneys: Fetus was 'distinctly abnormal'

Sunday's announcement came two days after a judge in Fort Worth ordered the hospital to remove any artificial means of life support from Munoz by 5 p.m. Monday. Earlier Sunday, the hospital said it intended to comply with that order.

"The past eight weeks have been difficult for the Munoz family, the caregivers and the entire Tarrant County community, which found itself involved in a sad situation," a hospital statement said. "JPS Health Network has followed what we believed were the demands of a state statute."

The hospital acknowledged Friday that Munoz, 33, had been brain dead since November 28 and that the fetus she carried was not viable. Her husband, Erick Munoz, had argued that sustaining her body artificially amounted to "the cruel and obscene mutilation of a deceased body" against her wishes and those of her family.

Marlise Munoz didn't leave any written directives regarding end-of-life care, but her husband and other family members said she had told them she didn't want machines to keep her blood pumping.

The ethics of life support

In an affidavit filed Thursday in court, Erick Munoz said little to him was recognizable about his wife. Her bones crack when her stiff limbs move. Her usual scent has been replaced by the "smell of death." And her once lively eyes have become "soulless."

The hospital's position drew support from demonstrators outside the hospital, some of whom held signs last week that read "God stands for life" and "Praying for Baby Munoz and family." But others countered with placards bearing messages like "Let Marlise rest in peace" and "Respect Marlise's wishes."

Culture of Life

ADDRESS OF JOHN PAUL FRANCIS TO THE PARTICIPANTS IN ORGANIZED BY THE INTERNATIONAL FEDERATION OF ASSOCIATIONS OF CATHOLIC DOCTORS
Clementine Hall Friday , September 20, 2013

 I apologize for the delay, because today ... this is a morning too complicated for audiences ... I apologize. 1. The first point that I would like to share with you is this: we are witnessing today in a paradoxical situation , dealing with the medical profession. On the one hand we see - and thank God - the progress of medicine, thanks to the work of scientists who, with passion and with no savings, are dedicated to finding new cures. On the other hand, however, we find also the danger that the doctor might lose its identity as a servant of life. The cultural disorientation has also affected what looked like an unassailable area: your, medicine! Although by their nature at the service of life, the health professions are sometimes induced to disregard life itself. Instead, as we remember the Encyclical Caritas in Veritate , "openness to life is at the center of true development." There is no true development without this openness to life. "If you lose the personal and social sensitivity towards the acceptance of a new life, then other forms of acceptance that are valuable for society also wither away. The acceptance of life strengthens moral fiber and makes people capable of mutual help "(n. 28). The paradoxical situation is seen in the fact that while you give the person new rights, sometimes even alleged rights, does not always protect the life as a primary value and basic right of every man. The final objective of doctor is always the defense and promotion of life. 2. The second point: in this context, be heard, the Church appeals to the conscience, the conscience of all health care professionals and volunteers, in a particular way you Gynecologists, called to collaborate in the creation of new human lives. Yours is a unique vocation and mission, which requires study, conscience and humanity. At one time, the women who helped in childbirth called "comadre" is like a mother to the other, with the real mother. You too are "comadri" and "compadri", too. A widespread mentality of profits, the "culture of waste", which now enslaves the hearts and minds of many, has a very high cost: it requires to eliminate human beings, especially if they are physically or socially weaker. Our response to this mentality is a "yes" and decided without hesitation to life. "The first right of the human person is his life. He has other goods and some of them are more precious, but is the fundamental good condition for all others "(Congregation for the Doctrine of the Faith , Declaration on Procured Abortion , November 18, 1974, 11). Things have a price and are sold, but people have a dignity, worth more than things and do not have money. Many times, we find ourselves in situations where we see what it costs less is life. For this attention to human life in its totality has become in recent years a real priority of the Magisterium of the Church, particularly to the most defenseless, that is, the disabled, the sick, the unborn child, the child, the elderly, which is the most defenseless life. In the human fragile each of us is invited to recognize the face of the Lord, who in his human flesh has experienced the indifference and loneliness that often condemn the poorest, both in countries in the developing world, both in affluent societies . Every child is not born, but unjustly condemned to be aborted, has the face of Jesus Christ, the Lord's face, that before he was born, and then newborn has experienced rejection in the world. And every senior, and - I talked about the child: let's go to the elderly, another point! And every elderly, sick, or even if at the end of his days, carries the face of Christ. You can not discard, as we proposed the "culture of waste"! You can not discard! 3. The third aspect is a mandate: be witnesses and speakers of this "culture of life" . Your being Catholic entails greater responsibility: first of all to yourself, for the effort to be consistent with the Christian vocation, and then to contemporary culture, to help recognize the transcendent dimension in human life, the imprint of the creative work of God, from the very first moment of her conception. This is a commitment to the new evangelization that often requires going against the current, paying in person. The Lord counts on you to spread the "Gospel of life." In this perspective the gynecology hospital departments are privileged places of witness and evangelization, because wherever the Church is "the vehicle of the presence of God" living at the same time becomes an "instrument of the true humanization of man and the world" (Congregation for the Doctrine of the Faith , Doctrinal Note on Some Aspects of Evangelization , 9). Growing awareness that the focus of medical care is the human person in a position of weakness, the health facility becomes' the place where the care relationship is not job - your job is not caring relationship - but mission , where the charity of the Good Samaritan is the first chair and the face of the sufferer, the Face of Christ "(Benedict XVI, Address at the University Cattolica del Sacro Cuore in Rome , May 3, 2012). Dear Friends doctors, who are called to take care of human life in its initial phase, remind everyone, with facts and words, this is always, in all its phases and at any age, sacred and is always quality. And not for a discussion of faith - no, no - but with reason, for a discourse of science! There is no human life more sacred than another, as there is a human life qualitatively more significant than another. The credibility of a health care system is measured not only for efficiency, but also for the attention and love towards people, whose life is always sacred and inviolable. Do not ever neglect to pray to the Lord and the Virgin Mary for having the strength to do your job well and bear witness with courage - courage! Today it takes courage - courage witness with the "Gospel of life"! Thanks a lot. -
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 © Copyright - Libreria Editrice Vaticana

Our Bodies, Our Consciences, By Kathryn Jean Lopez

February 4, 2013 12:00 A.M.

We are not alone. We can’t afford to pretend we are.

 

 

On the morning of the 40th anniversary of the Supreme Court’s infamous Roe v. Wade ruling, I felt a chill. And it wasn’t brought on by the appropriate bitterly cold weather that particular January morning. After Mass at St. Patrick’s Cathedral, some 500 or so New Yorkers walked through the streets of midtown Manhattan, in front of God, man, and Grand Central Station, praying the Rosary. Our prayers were for life and love and mercy. Our prayers were not in judgment of others but that we may do better, that women and men may see better options than abortion, that the hurt may be healed, that God may forgive us for letting anyone think she is alone and has no choice but the death of her child.

 

The chill was brought on by the knowledge that some of the commuters streaming into Grand Central knew the pain of abortion all too well. By the certainty that someone, on her morning commute, was thinking that was her only option. By the sharing in a community’s pain and guilt and sorrow.

We tend to live our lives masked in a veil of the imperial self. We pretend that we live alone. But as alone as we might sometimes feel, we make decisions that affect others. We need one another.
We do realize this, on some level. We’re decades into a welfare state premised on the idea that the government is our safety net. But the government cannot be a brother. The government cannot be a mother and a father. Where love thrives is in a flourishing civil society. That is where we flourish. Where our dreams are. Where we get the support that allows us to believe they can be fulfilled.

Our problems today run so deep. Now is the time to take a few steps back. Not to turn back the clock. But to reflect. To talk about some of the most contentious issues now that we are past the frenzy of a presidential election campaign.

Our problems won’t all be solved through legislative action. And legislative action, while it may sometimes be crucial, can’t be maximized without a fuller context. Congress may vote to defund Planned Parenthood, but we can’t assume that the political message that vote sends will cause the culture to change — that people will suddenly remember the poisonous eugenics upon which that organization was founded, that we will celebrate and protect human dignity, live chastely, and see adoption as a brilliant and generous option. A congressional vote is not a magic wand. There are so many steps that need to precede and follow it.

In a new book, Fill These Hearts, author Christopher West works on helping us with the backstory of our lives, a starting point for changing the terms of our debates and untangling our confusions. “Consider,” he writes, “the idea that our bodies tell a story that reveals, as we learn how to read it, the very meaning of existence and the path to the ultimate satisfaction of our deepest desire.”

“To call God ‘Father’ with a sincere heart is to recognize him as the ultimate origin of every good gift and to rest in his benevolent providence, trusting unflinchingly — despite life’s many sorrows and sufferings — that God does indeed have a perfect plan for our satisfaction. To call God ‘Father’ is to believe wholeheartedly that, in due time, he will provide precisely that for which we ache.” West quotes Psalm 145: “You give them their food at the proper time. You open your hand and satisfy the desires of every living thing.”

West makes the point that our bodies and our souls are not separate things, and that our very physical design speaks to our creation and destination. “In the biblical understanding, there exists a profound unity between that which is physical and that which is spiritual. This means that our bodies are not mere shells in which our true ‘spiritual selves’ live. We are a profound unity of body and soul, matter and spirit. In a very real way, we are our bodies.”
West writes as a Christian, but perceiving a person as an integrated whole does not depend on being a Christian, or a believer of any sort. Nor does understanding that men and women are different and complementary, and that that is a good thing. However, we can no longer take for granted that everyone understands that, let alone accepts, embraces, even celebrates it. Not when our federal health-care policy treats a woman’s fertility as a disease, a condition that she is expected to medicate away in order to achieve freedom and equality. Not when we are sending women into combat.

The world-famous former mayor of New York Ed Koch, who died just last week, was good friends with John Cardinal O’Connor. In 1989 they collaborated on a book, His Eminence and Hizzoner, in which Mayor Koch wrote: “The future of our nation depends on our ability to inculcate a strong sense of morality in our young people. That moral sense should be based on philosophical, ethical and religious teachings, which are the underpinnings of conscience. The way to oppose abortion is by challenging the conscience of those who advocate it. If the battle cannot be won at the level of conscience, it cannot be won.”

But what is conscience? What is right and wrong, and who are we and why are we? If we do not agree that there are answers to these questions — even if we don’t agree on what those answers are — we will never have a constructive debate about abortion, whether in terms of policy or of culture. That is the foundational work we need to return to. No election campaign is ever going to be better without it. Our culture is never going to be renewed without it. No lives are going to be truly redeemed without it. We won’t start making sense again without it. The dark bitter cold of winter will be warmed by the renewal that comes with embracing life, living life lovingly, supporting life, letting someone know she is not alone.

— Kathryn Jean Lopez is editor-at-large of National Review Online. This column is available exclusively through Andrews McMeel Universal’s Newspaper Enterprise Association. She is a director of Catholic Voices USA.